Gastrointestinal Neuroendocrine Tumor Patient Stories

I plan on having a very, very long life. I’m 66 years old and I run a daycare in Havertown, Pennsylvania. Until I was diagnosed, I had no symptoms to speak of and had lived a healthy lifestyle. That’s why when doctors told me I had carcinoid tumors, I had trouble believing I was really sick.

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Lynn Tucker

Neuroendocrine Tumors

Lynn Tucker

Neuroendocrine Tumors

When something feels wrong, speak up. For Lynn Tucker, that sentiment is more than empowering, it’s life changing.

Five years ago Lynn began to experience stomach pain so severe that at times it left her housebound and unable to move. For years, she went from doctor to doctor, received countless tests, and was repeatedly misdiagnosed.

“I was told I had a hernia, Crohn’s Disease, and several other conditions,” Lynn said. “Finally, I just accepted the pain as something I would have to live with. I didn’t think I would ever feel well.”

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Barry Dixon

Neuroendocrine Tumors

Barry Dixon

Neuroendocrine Tumors

In September 2009, Barry Dixon was living and working in South Carolina with his fiancé and their son, Robert Phillip. As a maintenance technician for an apartment management firm, Barry performed a lot of physical labor. One day, while helping his cousin move, Barry thought he pulled something in his abdominal area. It caused more pain than he was used to. He went to the doctor on a Friday, who ordered further testing for the following Monday.